Educational materials providing further information on generalised and partial lipodystrophy can be found below.

Generalised and partial Lipodystrophy

Lipodystrophy is a life-threatening, rare disease with many faces. This brochure gives you insights into the core characteristics and supportive clinical characteristics in generalised and partial lipodystrophy patients.

Improving the diagnosis of lipodystrophy 

This brochure explores the physiology of leptin and the consequences of leptin deficiency plus the characteristics and classifications of lipodystrophy.

A rare challenge

In this unique report, clinical experts and patient groups from across Europe discuss the current challenges in lipodystrophy and what must be done to improve outcomes for those affected.


At ECE 2019, Aegerion Pharmaceuticals (now Amryt Pharmaceuticals) sponsored a symposium and meet the expert session on lipodystrophy.  Content on these activities plus interviews with the panel are now available on touchENDOCRINOLOGY through the following link:

Date of preparation January 2020