Patient organisations

Diagnosis of generalised and partial lipodystrophy is challenging owing to a wide variability in clinical manifestations and severity of symptoms. Hence, many patients may experience marked delays in obtaining a definitive diagnosis. Patient organisations might help patients to deal better with their disease and can furthermore provide important detailed information about lipodystrophy.

Patient organisations in Europe

France
AFLIP – Association Française des Lipodystrophies
Italy
AILIP - Associazione Italiana Lipodistrofie
Portugal
AELIP - Asociación de Familiares y Afectados por Lipodistrofias
Spain
AELIP - Asociación de Familiares y Afectados por Lipodistrofias
United Kingdom
Lipodystrophy UK