Patient organisations

Diagnosis of generalised and partial lipodystrophy is challenging owing to a wide variability in clinical manifestations and severity of symptoms. Hence, many patients may experience marked delays in obtaining a definitive diagnosis. Patient organisations might help patients to deal better with their disease and can furthermore provide important detailed information about lipodystrophy.

Patient organisations in Europe

SPAIN

AELIP - Asociación de Familiares y Afectados por Lipodistrofias
Website: www.aelip.org

FRANCE

AFLIP – Association Française des Lipodystrophies
Email: asflip@free.fr
Facebook: facebook.com/AFLIP02
Twitter: AFLIP_France
Website: www.net1901.org/

UNITED KINGDOM

Lipodystrophy UK
Email: LipodystrophyUK@hotmail.com
Facebook: www.facebook.com/LipodystrophyUK/
Twitter: LipodystrophyUk
Website: www.lipodystrophy.co.uk

ITALY

AILIP - Associazione Italiana Lipodistrofie
Email: info@ailip.it
Website: www.ailip.it (in development)