Treatment centres

In Europe, there are a number of centres that specialise in the diagnosis and management of lipodystrophy in adults or children that can provide important information on the disease as well as appropriate treatment and support.

Belgium

Leuven

Professor Bart van Schueren
Dr. Ann Mertens

Department of Endocrinology
University Hospitals Leuven
Herestraat 49
3000 Leuven
bart.vanderschueren@uzleuven.be
ann.mertens@uzleuven.be

France

Paris

PRISIS
Centre coordonnateur du réseau national de référence des pathologies rares de l’insulino-sécrétion et de l’insulino-sensibilité
AP-HP Hôpital Saint-ANTOINE
184 rue du Faubourg Saint-Antoine
75571 Paris Cedex 12
Tel : +33 1 71 97 09 78, Fax: +33 1 49 28 29 69
prisis@firendo.fr

 

Germany

Düsseldorf

Univ.-Prof. Dr. Michael Roden
Klinik für Endokrinologie und Diabetologie
Universitätsklinikum Düsseldorf
Moorenstr. 5
40225 Düsseldorf, Germany
Phone: +49 211 - 81 00

Leipzig

Professor Michael Stumvoll
Leipzig IFB Lipodystrophy Centre
Division of Endocrinology-University of
Leipzig/University Hospital Leipzig
Liebigstr. 18
04103 Leipzig, Deutschland
lipodystrophie@medizin.uni-leipzig.de
Phone: +49 341 97 13380
https://www.uniklinikum-leipzig.de/einrichtungen/lipodystrophiezentrum/informationen-zur-lipodystrophie

Münster

Prof. Hartmut H.-J. Schmidt
Clinic for Transplantation Medicine,
Universitätsklinikum Münster
Albert-Schweitzer-Campus 1, Gebäude A14
48149 Münster
Deutschland
Phone: +49 251 83 57935

Ulm

Professor Martin Wabitsch
Abteilung für Kinder- und Jugendmedizin
Universitätsklinik Ulm
Eythstr. 24
89075 Ulm
Deutschland
Martin.Wabitsch@uniklinik-ulm.de

Greece

Athens

Dr Vana Spoulou
Associate Professor Paediatric Infectious Diseases
Paediatric HIV Referral Unit “Agia Sophia” Children’s Hospital
Thivon & Papadiamantopoulou, Goudi,
Athens 115 27, Greece
Phone: 00306944149266

Italy

Bologna

Alessandra Gambineri, MD PhD (Endocrinologist)
Human Lipodystrophies Endocrinology Unit
Dept. of Clinical Medicine
S. Orsola-Malpighi Hospital
Via Massarenti 9, Bologna
Mail: alessandra.gambineri@aosp.bo.it
Phone:+39 516364628; +39 3477738178

Pisa

Prof. Ferruccio Santini, MD PhD
(Associate Professor of Endocrinology)
Obesity Center-Endocrinology Unit
University Hospital of Pisa
Via Paradisa, 2
56124 Pisa
ferruccio.santini@med.unipi.it
Phone: +39050997345

Rome

Marco Cappa MD PhD
Head of Endocrinology Unit
Bambino Gesù Children's Hospital, IRCCS
Piazza di Sant'Onofrio, 4
00165 Rome
marco.cappa@opbg.net
Phone: +39 0668592605

Netherlands

Leiden

Dr. I. M. Jazet
Afdeling Endocrinologie/Interne Geeneskunde
Leids Universitair Medisch Centrum
Leiden
endo@lumc.nl

Poland

Krakow

Jagiellonian University Medical College (JUMC)
Maciej T.Malecki, M.D., PhD
Professor, Head of the Department
Department of Metabolic Diseases,
Jagiellonian University, Medical College, Krakow
Kopernika 15,
31-501, Krakow
Phone: +48-12-4248300

Portugal

Porto

Porto University
Dra. Paula Freitas
Centro Hospitalar de São João.
Faculdade de Medicina da Universidade do Porto

Russia

Moskau

Russian Research Group on Lipodystrophies Moskau
https://www.eclip-web.org/groups/russia/

Spain

A Coruña

Rheumatology Division Proteomics Group - ProteoRed ISCIII
Francisco Javier Blanco García, PhD
Instituto de Investigaciones Biomédicas de A Coruña
Complexo Hospitalario Universitario de A Coruña (INIBIC-CHUAC)
As Xubias, 84
15006 - A Coruña
fblagar@sergas.es
Phone: +34 981 17 63 99 Fax: +34 981 17 63 98

Barakaldo

Clara I. Rodríguez, PhD
Stem Cell Laboratory
BioCruces Research Institute/Hospital Universitario Cruces
Plaza de Cruces s/n. 48903.
Barakaldo, Bizkaia, Spain
cirodriguez@osakidetza.net
Phone: +34 946006376 (ext. 2434)

Barcelona

Prof. Francesc Villarroya, PhD
Department of Biochemistry and Molecular Biology
Universitat de Barcelona
fvillarroya@ub.edu

Ciudad Real

Prof. Juan Ramón Peinado, PhD
Department of Medical Sciences.
Faculty of Medicine, Ciudad Real
Paseo de Moledores SN.
Ciudad Real
Juanramon.peinado@uclm.es
Phone: 627952109

Córdoba

Prof. Maria M Malagon, PhD
Adipobiology Group
Instituto Maimónides de Investigación Biomédica de Córdoba-IMIBIC
University of Cordoba
Edif. Severo-Ochoa, Pl. 3, Campus Universitario de Rabanales,
14014-Cordoba
bc1mapom@uco.es
Phone: +34957212256

Murcia

Clinical Genetics and Rare Diseases
Encarna Guillén-Navarro, MD, PhD
Hospital Clínico Universitario Virgen de la Arrixaca. Murcia.
Faculty of Medicine, University of Murcia
Ctra Madrid-Cartagena, s/n.
30120. El Palmar. Murcia
guillen.encarna@gmail.com
Phone: +34 968369042 / 637072821

Oviedo

Victor Quesada, PhD
UNIOVI, Universidad de Oviedo
C/ Fernando Bongera S/N
Oviedo
quesadavictor@uniovi.es
Phone: +34985105025

Santiago de Compostela

Prof. David Araújo-Vilar
CIMUS-Universidade de Santiago de Compostela
Avda Barcelona s/n
15707 Santiago de Compostela, Spain

Prof. Angel Carracedo
Fundación Galega de Medicina Xenómica
Servicio Galego de Saúde
angel.carracedo@usc.es

Sweden

Stockholm

Maria Eriksson PhD, Associate professor
Karolinska Inst., Dept of Biosciences and Nutrition
NOVUM, Hälsovägen, Stockholm
Phone: +46 8 52481066

Turkey

Izmir

Turkish Lipodystrophy Study Group (TuLip)
Baris Akinci, MD, Associate Professor
Tevfik Demir, MD, Associate Professor

Div Endocrinology and Metabolic Diseases
Dept Internal Medicine
Dokuz Eylul University School of Medicine, Izmir

Samim Ozen, MD, Associate Professor
Div Pediatric Endocrinology
Dept Pediatrics
Ege University School of Medicine, Izmir

United Kingdom

Cambridge

Prof. Sir Stephen O’Rahilly –
Professor of Clinical Biochemistry and Medicine
Prof. David Savage –
Consultant in General and Metabolic medicine
Dr Anna Stears -
Consultant in Diabetes and Endocrinology
Dr Rachel Williams -
Consultant in Paediatric Diabetes and Endocrinology

National Severe Insulin Resistance Service, Wellcome
Trust-MRC Institute of Metabolic Science,
Cambridge University Hospital NHS Foundation Trust,
Addenbrooke’s Hospital
MS MRL, Box 289, Level 4 Addenbrooke’s Hosp.,
Hills Rd.
Cambridge, UK
dbs23@cam.ac.uk

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